I attribute much of Rob’s improvement to the sensory integration therapy we did with him. He was highly tactilely defensive and did not seem to have a good sense of where his body ended. I am frustrated that sensory integration therapy was for many years dismissed by some in the autism community as another quack therapy, because they didn’t understand why it worked. Now they are documenting the neural processes that connect touch, social difficulty, and autism.
September 16, 2016
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March 9, 2015
Scientists at King’s College London have collected evidence from a population-based sample revealing that genetic factors outweigh more moderate environmental influences regards risk of autism and related traits in personality. They published their results online this week in JAMA Psychiatry.Over 6,000 twins, born in England and Wales between 1994 and 1996, with a variety of autism-related traits – high and low subclinical levels, as well as ASD, – participated in several evaluations: the Childhood Autism Spectrum Test (6,423 twins), the Development and Well-being Assessment (359), the Autism Diagnostic Observation Schedule (203), the Autism Diagnostic Interview-Revised (205), and a best-estimate diagnosis (207) – and all of them showed consistency in their results. […]
“Our main finding was that the heritability of ASD was high. These results further demonstrate the importance of genetic effects on ASD, despite the dramatic increase in prevalence of the disorder over the last 20 years,” said lead author Beata Tick in a statement.
“They also confirm that genetic factors lead to a variety of autistic skills and behaviors across the general population,” Tick added. […]
Our findings add weight to the view that ASD represents the extreme manifestation of autistic skills and behaviors seen in the general population,” Bolton added.
October 13, 2014
This makes a lot of sense to me. Combine a disorder of prediction with a sensory integration dysfunction and it would be very anxiety-provoking.
August 1, 2014
But that’s the problem with this whole autism business; we want precisely what is not available to us — something definitive, like a cause, a cure. Enough, already, with the ambiguities, the gray zones.
Still, it was definitiveness that was worrying me when I began reading “The Kids Who Beat Autism,” Ruth Padawer’s cover story in the Aug. 3rd New York Times Magazine. Mainly, I didn’t want to discover all the things my wife, Cynthia, and I could have done and didn’t. That thought keeps me up enough nights as it is.
Joel Yanofsky’s reaction to the recent New York Times Magazine article on The Kids Who Beat Autism strikes a chord within me, the familiar angst among parents of autistic children: Could we have done better? Did we miss something that could have helped? What if we didn’t have the time/resources/energy to do ABA (something that did not become widespread until later)? Could our child have been among the approximately 10% who “recover” from autism??
Some people would say that Rob is among that 10%. He is certainly “indistinguishable” from the non-autistic population in casual interaction, but he has some social deficits that become more obvious in extended and/or repeated interactions, and that affect his ability to hold certain types of jobs. Could any of this have been helped if he had been diagnosed earlier, and if he had been given intensive ABA treatment? It is hard to say. We feel fortunate that he is highly functional. But I would not say that he has outgrown, recovered from or “beat” his autism. The ambiguity of the diagnosis makes it difficult to assess his recovery.
Rob was not diagnosed until about two months before his sixth birthday. He was not withdrawn into his own little world so much, as he was hyperactive, aggressive, destructive, obsessive, and socially inept in our world. He was verbal, could make eye contact (although he didn’t like to), and we were more concerned about his aggression and destruction than anything else. We concentrated on intensive sensory integration therapy, and the therapies through his school: speech therapy, physical therapy, social skills training, behavior therapy (although not as intensive as ABA).
Rob still has fine motor issues that are very particular (he is a graphic designer, and can draw using a mouse; but not a pencil or pen; his writing is still pretty illegible, even his printing). His gross motor skills are excellent, and he is very athletic. He is intelligent and highly verbal, but still finds social interaction to be stressful. He tends to go into social or psychological “defense mode” easily, still; but at least it is no longer accompanied by physical defense mode as well. He has had some success in community college. He has had some success in work, along with some failures.
If we had to do it over again we would certainly have tried ABA if he had been diagnosed young enough. I think by age six it may have been too late, however. For Rob, I still think the best thing was the sensory integration therapy, because until those issues were addressed it would have been difficult for him to focus on anything else. But I am not an expert, only a parent who tried to do her best in a highly ambiguous situation.
March 26, 2014
Wow. Just wow.
January 9, 2014
This is a really interesting idea, and seems as if it would be very appealing.
November 6, 2013
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This is something I noticed early in Rob: he did not gaze into my eyes while nursing like his sister had. And I remember realizing it when, one time while nursing, he sat up, looked at me intently in the eyes, put his hand on my cheek; than laid back down and began nursing again. I was shocked, thinking “What was THAT!” because it seemed so strange. That’s when I realized part of what made it strange is that he engaged in very little eye contact otherwise.